Story 24 – Huan Huan
Huan Huan is from XinJiang. She lives with her parents and younger brother. She was diagnosed with Osteogenesis imperfecta (an inherited bone disorder that causes soft, weak, and easily broken bones) with multiple limb deformities and scoliosis. Despite numerous surgeries were conducted to help straightening her lower limbs, Huan Huan continued to experience pain in her right hip, and needed assistance when walking. Her severe scoliosis meant that she was experiencing back pain after walking just 500m, and her lung function was deteriorating. Therefore, surgical intervention was needed for her to live more comfortably.
Last updated: May 2018